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[WROPC2012]前苏联早产儿视网膜病变筛查和治疗情况

玻璃体病 视网膜病  作者:  RasaBagdoniene,RasaSirtautiene  2012/11/14 16:52:00
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内容概要:就在第三届世界早产儿视网膜病变大会前,有乌兹别克斯坦的医生找到我们,他们已经成功诊断了ROP,但是因为缺乏设备和相关知识,他们没有能力采取进一步的治疗。这样的问题在一些其他的前苏联国家同样存在,这些国家也在进行ROP筛查。

  Small Baltic country Lithuania was the first where ROP screening and treatment was introduced in 1994 (after the crash of Soviet Empire).
  1994年,苏联解体之后,波罗的海的小国立陶宛开展了世界上第一次早产儿视网膜病变(ROP)的筛查和治疗工作。
  The first world ROP meeting was held in Vilnius 2006. We never expected guests from such different countries from all over the world. However, attendance from South Caucasus and Eastern Asia republics was nonexistent.
  2006年,世界上的第一次ROP会议维尔纽斯。我们从不期望参会的嘉宾来自世界各地,没有来自南高加索和东亚地区的国家参加那次会议。
  In recent years we can clearly see an emerging trend in increase of ROP numbers in developing regions of former Soviet Union Countries. From our point of view, the best and the shortest way to implement ROP screening and treatment: to visit the country by expert of the field, to give lectures about the disease, to start the screening of all premature babies in the department together with local ophthalmologists, nurses, neonatologists, instead of sending local doctors abroad for observation of excellent working preventive system.
  我们清楚地发现,最近几年,在原苏联国家的发展中地区,ROP患者的数量呈上升趋势。在我们开来,实现ROP筛查和治疗的最佳、最简洁的方法,就是让ROP领域的专家访问那些国家,在那里就这个疾病进行讲学,与当地的眼科医生、护士、新生儿科医生一起开展ROP的筛查工作,而不是把当地的医生送到国外去进修先进的疾病预防系统。
  We want to share our experience of helping to start with this problem in different countries:
  我们希望分享我们经验,帮助不同的国家启动ROP筛查工作。
  Georgia – population 4.6 mln, Republic of Kazakhstan – population 16 mln.
  格鲁吉亚人口有460万,哈萨克斯坦共和国人口有1600万。
  The problems arising in these countries are different.
  不同的国家存在的问题也不一样。
  In Georgia we discovered strong human factor, on the other hand obstacles in organization of timely screening and lack of equipment for screening and treatment.
  在格鲁吉亚,我们发现是人为因素造成ROP流行,筛查组织工作障碍重重,缺乏用于治疗和筛查ROP的设备。
  2009年,我们帮助格鲁吉亚的第比利斯市引进了ROP筛查,2011年第比利斯的第一例ROP手术由我们完成。
  2009: we helped to introduce ROP screening in Tbilisi, Georgia and in 2011 - the first operation for ROP in Tbilisi was performed by us.
  In the Republic of Kazakhstan was enough financial recourse, but there are obstacles in organization of timely screening: huge country requiring many specialists to start with screening.
  在哈萨克斯坦共和国,那里资金充足,但及时进行ROP筛查的困难依然存在,哈萨克斯坦国土辽阔,没有足够多的眼科医生来启动这项工作。
  In 2011 we organized the first screening procedures, 2011 – the first master class on ROP, 2011 - the first operation for ROP in history of Republic of Kazakhstan was performed by us.
  2011年,我们组织了哈萨克斯坦的第一次ROP筛查和第一次ROP学习班,同一年,哈萨克斯坦的第一例ROP手术也由我们完成。
  Common for all countries:  lack of educational material for staff and parents. That’s why we published the manual  for doctors in Russian language.  In Georgian, Kazakh and Russian languages we published informational material for medical staff, parents and society.
  在所有的国家普遍存在相同的问题:医护人员和患儿家长缺乏教育培训材料,这是我们出版俄语医生手册的原因。我们为医护人员、家长和社会出版了一些格鲁吉亚语、哈萨克语和俄语的咨询材料。
  我们的工作取得了丰硕的成果,这些工作常常受以下的一些因素影响:第一点是前苏联国家的家长和相关人士对ROP的知晓与了解程度;第二点是使用俄语与人交流的能力,俄语仍然是目前这些国家交流的主要语言。由于这里网络不够发达,外文读物欠缺,英语知识匮乏,使得有效沟通十分有限。西方国家的专家在这里与人交流更为困难,这里的人更习惯于将真实的情况粉饰一翻,使它看起来没有事实上那么差。当地的医生通常还是把我们当作“自己人”来看待,所以,跟我们交流时更为开放一些,不对他们所面临的问题遮遮掩掩。
  Substantial outcomes of our work were mostly influenced by following factors: awareness of mentality of former Soviet people both patients and administrators in charge, ability of interacting in Russian language which to this day is still the most common mean of conversation among those countries. Effective way for communication is mostly restricted by the insufficient access to the internet, foreign literature and lack of English knowledge. The contacts with western experts are more difficult and mostly influenced by tendency to present reality being better than it in fact is. The specialists of those countries tend to treat us more as ?like insiders“. Therefore they are communicating more openly with us without trying to hide the problems which they have.
  Understanding of these approaches is main factor of productivity of our work.
  对以上各项事项的理解,使我们工作收获丰硕的主要原因。
  就在这次会议前,有乌兹别克斯坦的医生找到我们,他们已经成功诊断了ROP,但是因为缺乏设备和相关知识,他们没有能力采取进一步的治疗。这样的问题在一些其他的前苏联国家同样存在,这些国家也在进行ROP筛查,玻璃体切割手术是治疗ROP的唯一途径。
  Just before the meeting we were approached by doctors from Uzbekistan who had successfully diagnosed ROP, but were unable to perform any treatment because of the lack of equipment and knowledge. These types of problems are relevant to some other former soviet countries where the only way of treatment of ROP is vitrectomy and screening programs are being performed.


 
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